JACKSONVILLE, Ill. — Heather Crivilare was a month from her due date when she was rushed to an operating room for an emergency cesarean section.

The first-time mother, a high school teacher in rural Illinois, had developed high blood pressure, a sometimes life-threatening condition in pregnancy that prompted doctors to hospitalize her. Then Crivilare's blood pressure spiked, and the baby's heart rate dropped. "It was terrifying," Crivilare said.

She gave birth to a healthy daughter. What followed, though, was another ordeal: thousands of dollars in medical debt that sent Crivilare and her husband scrambling for nearly a year to keep collectors at bay.

The Crivilares would eventually get on nine payment plans as they juggled close to $5,000 in bills.

"It really felt like a full-time job some days," Crivilare recalled. "Getting the baby down to sleep and then getting on the phone. I'd set up one payment plan, and then a new bill would come that afternoon. And I'd have to set up another one."

Crivilare's pregnancy may have been more dramatic than most. But for millions of new parents, medical debt is now as much a hallmark of having children as long nights and dirty diapers.

About 12% of the 100 million U.S. adults with health care debt attribute at least some of it to pregnancy or childbirth, according to a KFF poll.

These people are more likely to report they've had to take on extra work, change their living situation, or make other sacrifices.

Overall, women between 18 and 35 who have had a baby in the past year and a half are twice as likely to have medical debt as women of the same age who haven't given birth recently, other KFF research conducted for this project found.

"You feel bad for the patient because you know that they want the best for their pregnancy," said Eilean Attwood, a Rhode Island OB-GYN who said she routinely sees pregnant women anxious about going into debt.

"So often, they may be coming to the office or the hospital with preexisting debt from school, from other financial pressures of starting adult life," Attwood said. "They are having to make real choices, and what those real choices may entail can include the choice to not get certain services or medications or what may be needed for the care of themselves or their fetus."

Best-laid plans

Crivilare and her husband, Andrew, also a teacher, anticipated some of the costs.

The young couple settled in Jacksonville, in part because the farming community less than two hours north of St. Louis was the kind of place two public school teachers could afford a house. They saved aggressively. They bought life insurance.

And before Crivilare got pregnant in 2021, they enrolled in the most robust health insurance plan they could, paying higher premiums to minimize their deductible and out-of-pocket costs.

Then, two months before their baby was due, Crivilare learned she had developed preeclampsia. Her pregnancy would no longer be routine. Crivilare was put on blood pressure medication, and doctors at the local hospital recommended bed rest at a larger medical center in Springfield, about 35 miles away.

"I remember thinking when they insisted that I ride an ambulance from Jacksonville to Springfield ... 'I'm never going to financially recover from this,'" she said. "'But I want my baby to be OK.'"

For weeks, Crivilare remained in the hospital alone as covid protocols limited visitors. Meanwhile, doctors steadily upped her medications while monitoring the fetus. It was, she said, "the scariest month of my life."

Fear turned to relief after her daughter, Rita, was born. The baby was small and had to spend nearly two weeks in the neonatal intensive care unit. But there were no complications. "We were incredibly lucky," Crivilare said.

When she and Rita finally came home, a stack of medical bills awaited. One was already past due.

Crivilare rushed to set up payment plans with the hospitals in Jacksonville and Springfield, as well as the anesthesiologist, the surgeon, and the labs. Some providers demanded hundreds of dollars a month. Some settled for monthly payments of $20 or $25. Some pushed Crivilare to apply for new credit cards to pay the bills.

"It was a blur of just being on the phone constantly with all the different people collecting money," she recalled. "That was a nightmare."

Big bills, big consequences

The Crivilares' bills weren't unusual. Parents with private health coverage now face on average more than $3,000 in medical bills related to a pregnancy and childbirth that aren't covered by insurance, researchers at the University of Michigan found.

Out-of-pocket costs are even higher for families with a newborn who needs to stay in a neonatal ICU, averaging $5,000. And for 1 in 11 of these families, medical bills related to pregnancy and childbirth exceed $10,000, the researchers found.

"This forces very difficult trade-offs for families," said Michelle Moniz, a University of Michigan OB-GYN who worked on the study. "Even though they have insurance, they still have these very high bills."

Nationwide polls suggest millions of these families end up in debt, with sometimes devastating consequences.

About three-quarters of U.S. adults with debt related to pregnancy or childbirth have cut spending on food, clothing, or other essentials, KFF polling found.

About half have put off buying a home or delayed their own or their children's education.

These burdens have spurred calls to limit what families must pay out-of-pocket for medical care related to pregnancy and childbirth.

In Massachusetts, state Sen. Cindy Friedman has proposed legislation to exempt all these bills from copays, deductibles, and other cost sharing. This would parallel federal rules that require health plans to cover recommended preventive services like annual physicals without cost sharing for patients. "We want ... healthy children, and that starts with healthy mothers," Friedman said. Massachusetts health insurers have warned the proposal will raise costs, but an independent state analysis estimated the bill would add only $1.24 to monthly insurance premiums.

Tough lessons

For her part, Crivilare said she wishes new parents could catch their breath before paying down medical debt.

"No one is in the right frame of mind to deal with that when they have a new baby," she said, noting that college graduates get such a break. "When I graduated with my college degree, it was like: 'Hey, new adult, it's going to take you six months to kind of figure out your life, so we'll give you this six-month grace period before your student loans kick in and you can get a job.'"

Rita is now 2. The family scraped by on their payment plans, retiring the medical debt within a year, with help from Crivilare's side job selling resources for teachers online.

But they are now back in debt, after Rita's recurrent ear infections required surgery last year, leaving the family with thousands of dollars in new medical bills.

Crivilare said the stress has made her think twice about seeing a doctor, even for Rita. And, she added, she and her husband have decided their family is complete.

"It's not for us to have another child," she said. "I just hope that we can put some of these big bills behind us and give [Rita] the life that we want to give her."

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism.

Copyright 2024 KFF Health News. To see more, visit KFF Health News.

Transcript

MARY LOUISE KELLY, HOST:

To a story now that will not be news to anyone who's had a baby. It's expensive - the diapers, the formula, the child care. Well, now medical debt has become yet another cost of having children in America. Noam Levey with our partner KFF Health News has this story of one Illinois family and the medical bills that piled up after their daughter was born.

KELLY: To a story now that will not be news to anyone who's had a baby. It's expensive - the diapers, the formula, the child care. Well, now medical debt has become yet another cost of having children in America. Noam Levey with our partner KFF Health News has this story of one Illinois family and the medical bills that piled up after their daughter was born.

NOAM LEVEY: Heather Crivilare and her husband made a lot of preparations before having their first child. They saved carefully. They got good health insurance. They looked for a community where two public school teachers could afford a home. But when Crivilare and her newborn daughter Rita came home from the hospital, there were still mountains of bills to navigate.

HEATHER CRIVILARE: It really felt like a full-time job some days getting the baby down to sleep and then getting on the phone. I'd set up one payment plan, and then a new bill would come that afternoon.

LEVEY: Altogether, Crivilare and her husband were left about $5,000 in debt. That forced them onto nine payment plans to keep ahead of collectors.

CRIVILARE: And we had a healthy baby. I just kept thinking, like, what am I going to do if she does get sick?

LEVEY: Crivilare's pregnancy had been a little more complicated than most. She developed high blood pressure, and Rita was delivered by emergency C-section. But the Crivilares' medical bills were hardly unusual. New parents in the U.S. with private health coverage on average face more than $3,000 in medical bills that aren't covered by their health plan. And if there are complications, bills can run more than $10,000.

MICHELLE MONIZ: Even though they have insurance, they still have these very high bills.

LEVEY: That's Dr. Michelle Moniz, an obstetrician from the University of Michigan. She studies out-of-pocket costs faced by new parents. A hundred million people in the U.S. have health care debt. About 1 in 8 say at least some of it came from pregnancy or childbirth. That's according to a nationwide KFF poll. These people also have bigger debt and say they are more likely to make difficult sacrifices like cutting back on food or clothing. Dr. Eilean Attwood is an obstetrician in Rhode Island.

EILEAN ATTWOOD: You feel bad because you know that they want the best for their pregnancy.

LEVEY: Attwood routinely sees young parents anxious about debt.

ATTWOOD: They are having to make real choices. And what those choices may entail can include the choice to not get certain services or medications or what may be needed for the care of themselves and their fetus.

LEVEY: For the Crivilare family in Illinois, the worries over finances got real when Heather was diagnosed with preeclampsia. It's potentially life-threatening. She was moved from her local hospital to a larger medical center 30 miles away.

CRIVILARE: I do remember thinking, when they insisted that I ride in an ambulance, I'm never going to financially recover from this. But it's like, oh, my gosh, I want my baby to be OK. I want to be OK.

LEVEY: A state senator in Massachusetts says parents shouldn't have this kind of worry. And...

CINDY FRIEDMAN: When women don't get adequate care during a pregnancy and postpartum, that costs the system an incredible amount of money.

LEVEY: State senator Cindy Friedman is sponsoring legislation that would exempt all medical bills related to pregnancy and childbirth from co-pays, deductibles and other cost sharing. Crivilare says she wishes new parents could catch their breath before they have to start paying off their medical bills, kind of like student debt.

CRIVILARE: When I graduated with my college degree, it was like, oh, hey, new adult. It's going to take you six months to kind of figure out your life. So we'll give you this six-month grace period before your student loans kick in.

LEVEY: Crivilare and her husband did manage to pay off the bills from the pregnancy, but they sank back into debt when their daughter, Rita, who is 2 now, needed surgery for ear infections. It's all made Crivilare think twice about going to the doctor, even for Rita. And she and her husband are now firmly resolved not to have more children. I'm Noam Levey in Jacksonville, Ill.

KELLY: And Noam Levey is with our partner KFF Health News.

KELLY: And Noam Levey is with our partner KFF Health News.

(SOUNDBITE OF MAHALIA SONG, "LETTER TO UR EX") Transcript provided by NPR, Copyright NPR.

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