Christina Costanzo was 32 when she had her first heart attack. It all started on a Friday.
"I had chest pain. I had pain in my jaw, pain going down my left arm. I had some shortness of breath," Costanzo recalls.
But Costanzo who is a nurse practitioner in New Haven, Conn., didn't realize right away that these were symptoms of a heart attack. She figured this was just her body reacting to stress, and she didn't want to overreact.
"I didn't want to go to the ER and wait for hours only to be told that there was nothing wrong with me," she says. "So I waited till Monday and I saw my primary care."
It was only then that Costanzo discovered she had had a heart attack — a big one.
Costanzo's story isn't unique.
Each year more than 15,000 women under the age of 55 die of heart disease in the United States. And younger women are twice as likely to die after being hospitalized for a heart attack as are men in the same age group.
Studies show that women tend to wait much longer than men to get emergency care for heart attacks. Once they do go to the ER, their symptoms are often misdiagnosed.
So Judith Lichtman, an epidemiologist at the Yale School of Public Health, tried to figure out why. In a recent study published in Circulation: Cardiovascular Quality and Outcomes, Lichtman and her colleagues conducted in-depth interviews with 30 women, ages 30 to 55, who had been hospitalized after a heart attack.
It turned out that many of them didn't really know what a heart attack is supposed to feel like.
"We often see it portrayed as someone falling to their knees, holding onto their chest," Lichtman says. In reality, most women tend to experience other symptoms along with some chest pain, including neck pain, jaw pain, indigestion, fatigue and nausea.
"Maybe we need to do a better job of explaining and describing to the public what a heart attack looks and feels like," Lichtman says.
But even when the women suspected that they were having a heart attack, many said they were hesitant to bring it up.
"Many of them said that they were concerned about being wrong, or having a false alarm," Lichtman says.
And doctors often reinforced women's fears, automatically assuming that the women were suffering from indigestion, or maybe a panic attack, rather than a heart attack.
"So I think it is really critical that we empower women to not feel any stigma or judgment," Lichtman says.
And she says doctors should do a better job of listening — and pay special attention to women who have high blood pressure or cholesterol, or a family history of heart disease.
An earlier version of this story ran in NPR's Shots blog. This version ran on NPR's Morning Edition.
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Transcript
RENEE MONTAGNE, HOST:
Jenny Gold is a reporter with our partner, the nonprofit news service Kaiser Health News. And now we turn to a group of people who don't seek medical care enough - women, especially young women, who are having a heart attack. Women under the age of 55 are twice as likely as men to die after being hospitalized for a heart attack. And as Maanvi Singh reports, part of the problem is that women often don't realize what's happening.
MAANVI SINGH, BYLINE: Christina Constanzo was 32 when she had her first heart attack. It all started on a Friday.
CHRISTINA COSTANZO: I had chest pain. I had pain in my jaw. I had some shortness of breath.
SINGH: And even though Costanzo was a nurse practitioner, she didn't realize right away that this was her heart. She figured it was just her body reacting to stress, and she didn't want to overreact.
COSTANZO: I did not want to go to the emergency room, sit there for hours only to be sent home and told, you know, there was nothing wrong with me. So I just waited until Monday and saw my primary care.
SINGH: That's when she discovered that she had had a heart attack - a big one. Costanzo's story isn't unique. Studies show that women tend to wait much longer than men to get emergency care for heart attacks. And once they do go to the ER, their symptoms are often misdiagnosed. In a recent study, Judith Lichtman, an epidemiologist at the Yale School of Public Health, tried to figure out why. She interviewed 30 women, ages 30 to 55, who had been hospitalized after a heart attack. It turned out that many didn't really know what a heart attack felt like.
JUDITH LICHTMAN: We often see it portrayed as someone falling to their knees, holding on to their chest.
SINGH: In reality, along with some chest pain, most women tend to experience other symptoms.
LICHTMAN: Things like neck pain, jaw pain, indigestion, fatigue.
SINGH: Even when they suspected that they were having a heart attack, many women said that they were hesitant to bring it up.
LICHTMAN: Many of them said that they were concerned about being wrong or having a false alarm.
SINGH: And doctors often reinforced women's fears, automatically assuming that they were suffering from indigestion or maybe panic attack rather than a heart attack.
LICHTMAN: I think it is really critical to empower women to not feel any stigma or judgment
SINGH: And she says doctors should do a better job of listening and pay special attention to women who have high blood pressure or cholesterol or a family history of heart disease. For NPR News, I'm Maanvi Singh. Transcript provided by NPR, Copyright NPR.
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